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Collaboration Between Families With a Child Diagnosed with a Autism Spectrum Disorder (ASD) and the Professionals Mobilized Around Them

In Québec, autism spectrum disorder (ASD) constitutes the most prevalent disability among school-age and pre-school children (Noiseux, 2011). Despite the introduction of several social policies in the last decades, the overall service offer does not seem to match the increased incidence of such diagnoses, with consequences for the children's development and families' well-being (des Rivières-Pigeon and Courcy 2014; Protecteur du citoyen 2009). Many parents have expressed frustration about having to maneuver as best they can to obtain assistance and services for their children. This research is about the relationships of collaboration that form between families of children diagnosed with ASD, social workers, and other professionals mobilized around these families. The goal is to study the circulation of information and sharing of knowledge from the perspective of the social workers, in the health and social services system, who play a key role in the family's process of seeking assistance and services.


  • Contribute to the thinking of the organization of support services for children diagnosed with ASD and their family with a view to improving its effectiveness
  • Identify the "complications" in helping relationships between social workers and families 
  • Expand the conceptualization of helping relationships between social workers and families of children diagnosed with ASD, with a view to providing more adapted services that address families' situations and needs


Lead researcher : 
Isabelle Courcy, stagiaire postdoctoral ARIMA 2015-2016, Université de Montréal
Collaborator : 
Deena White, CRPS InterActions du CIUSSS du Nord-de-l'Île-de-Montréal et Département de sociologie, Université de Montréal 
Clip produced for the Inter-regional Colloquium of Febuary 2016