Projets

« Back

Networks of Families With Children Exhibiting Autism Spectrum Disorders (ASD) in Québec

In North America, it is estimated that one out of 68 children are living with an autism spectrum disorder (ASD) (CDC, 2014). Many families as well as healthcare and education professionals point out the blatant lack of assistance for those children and their families. Many families have to turn to the private sector in order to get help, which puts them in quite the vulnerable situation. This research seeks to understand the effects of the formal and informal support networks mobilized by parents in their numerous efforts to help their child (education, daycare, specialized interventions, grants and financial aid). More specifically, we analyze the types of assistance and exchanges (money, time, resources) that occur among the family members, and between the family and the formal and informal networks (parents, friends, neighbours, Internet).

EXPECTED IMPACTS

  • Produce a first portrait the situation of families in Québec with a child diagnosed with ASD
  • Serve as a lever for wide-scale action 
  • Serve as a basis for mobilizing actors' knowledge to develop adapted policies, programs, and practices in the field of ASDs

PRODUCTION TEAM

Lead researcher : 
Catherine des Rivières-Pigeon, Département de Sociologie, UQAM 
Collaborators :
Hélène Belleau, INRS – urbanisation, culture et société 
Deena White, Département de sociologie, Université de Montréal
Marie-Claire Major, Office des personnes handicapées du Québec 
Lyne Dubé, CISSS de l'Outaouais
Marie-Josée Bisaillon,  CIUSSS du Nord-de-l'Île-de-Montréal
Katelyn Gauvin, CIUSSS du l'Est-de-l'Île-de-Montréal
 
Clip produced for the Inter-regional Colloquium of Febuary 2016